The Basics: Baseline Survey Details and Resources

Survey Design

The Basics survey is a baseline instrument that asks basic demographic questions, including questions about a participant’s work and home. The survey includes a total of 73 items (44 main items and 29 related follow-ups) sourced from well-established studies including National Health and Examination Survey (NHANES), the United States Census, the National Health Interview (NHIS) survey, the Behavioral Risk Factor Surveillance System (BRFSS), and the UK Biobank among others. 

 

Scoring Considerations for the Basics Survey

Because the Basics survey is composed of items from various sources and is mainly categorical in nature, it can not be scored as a whole. In addition, the survey does not include any source-derived scales that can be scored individually. 

 

Sample Eligibility

The survey is considered a “baseline” program activity and is available to all All of Us participants following completion of the program consent. Participants are required to complete the Basics survey before they are invited to participate in other program activities including additional surveys or collection of specimens and physical measurements. For more information about survey samples and releases, please see Introduction to All of Us Survey Collection and Date Transformation Methods.

 

Data Model & Privacy Protection Considerations

All survey codebook variables (e.g., source codes) are deposited into the OMOP Common Data Model’s observation table and stored as concepts in an AoU specific “PPI” vocabulary. This vocabulary is both browsable and downloadable via Athena, the online OMOP repository - for a listing of concepts specific to the Basics survey, please see this Athena entry. 

 

Select items from the Basics survey have been either suppressed or generalized within the Registered and Controlled Tiers. Please see below for these specifics, which are also captured in the All of Us survey codebook and How All of Us Protects Participant Privacy. Note: participant demographics from the Basics survey are used to populate the OMOP person table in both the Registered and Controlled Tier CDRs; select privacy generalizations noted below will be observed there.

 

Registered and Controlled Tier Privacy Considerations for the Basics Survey

Data Element

Registered Tier

Controlled Tier 

Explicit identifiers (Concept IDs 1585961 (all affiliated codes), 1585905 (all affiliated codes), 1585949 (all affiliated codes))

Suppress

Suppress 

Free text fields (Concept IDs 1586137, 1586148, 1585604, 1585615, 1585628, 1585835, 1585320, 1585331, 1585344, 1585356, 1585850, 1585367, 43529654,

Suppress

Suppress

Birthplace (In what country were you born?; Concept ID 1586135)

Generalized

As Collected

Marital status (What is your current marital status?; Concept ID 1585892)

As Collected 

As Collected 

Living situation (Where are you currently living?; Concept ID 1585402)

Suppress

As Collected 

Own or rent (Do you own or rent the place where you live?; Concept ID 1585370)

As Collected 

As Collected  

Higher level Race/Ethnicity (Which categories describe you? Select all that apply. Note, you may select more than one group.; Concept ID 1586140)

Generalize

As Collected 

Race/Ethnicity subcategory (Eg: Hmong, Filipino, Caribbean; Concept IDs 1586141, 1586142, 1586143, 1586147, 1586144, 1586145, 1586148, 1586146)

Suppress

Suppress

Sex at birth (What was your biological sex assigned at birth?; Concept ID 1585845)

Generalize

As Collected *

Includes all branching logic questions

Gender identity (What terms best express how you describe your gender identity?; Concept ID 1585838)

Generalize

As Collected *

Includes all branching logic questions

Sexual orientation (Which of the following best represents how you think of yourself?; Concept ID 1585899)

Generalize

As Collected *

Includes all branching logic questions

Education (What is the highest grade or year of school you completed?’ Concept ID 1585940)

Generalize

As Collected 

Employment status (What is your current employment status? Please select 1 or more of these categories.; Concept ID 1585952)

Generalize

As Collected 

Annual household income (What is your annual household income from all sources?; Concept ID 1585375)

As Collected 

As Collected 

Active duty military status (Have you ever served on active duty in the United States Armed forces, either in the regular military or in a National Guard or military reserve unit?; Concept ID 1585852)

Suppress

As Collected 

 

Was this article helpful?

0 out of 0 found this helpful

Have more questions? Submit a request