Race and ethnicity generalizations

Note: All electronic health record (EHR) data regarding race and ethnicity are removed from the Registered Tier dataset. These data are provided by the participant through surveys that have been subjected to the All of Us privacy methodology. Additionally, all EHR diagnosis codes that are indicative of race and ethnicity minority status are removed. 

PERSON TABLE

Race and ethnicity data in the Person table comes from the answers to the question below in THE BASICS survey.  

Question: Which categories describe you? Select all that apply. Note, you may select more than one group.

Options: White; Black, African American or African; Asian; Native American or Alaska Native*; Middle Eastern or North African; Native Hawaiian or other Pacific Islander; Hispanic, Latino, or Spanish; None of these fully describe me; Prefer not to answer

PARTICIPANT SELECTION(S)

RACE column

ETHNICITY column

Only White selected

White

Non-Hispanic

Only Black, African American, or African selected

Black

Non-Hispanic

Only Asian selected

Asian

Non-Hispanic

One but NOT multiple of the options selected:

  • Middle Eastern or North African
  • Native Hawaiian or other Pacific Islander

Another single population

Non-Hispanic

Only Hispanic, Latino, or Spanish selected

No matching concept

Hispanic, Latino, or Spanish

Two or more of any of the following selected:

  • White
  • Black, African American or African
  • Asian
  • Middle Eastern or North African
  • Native Hawaiian or other Pacific Islander

More than one population

Non-hispanic

White and Hispanic, Latino, or Spanish selected

White

Hispanic, Latino, or Spanish

Black and Hispanic, Latino, or Spanish selected

Black

Hispanic, Latino, or Spanish

Asian and Hispanic, Latino, or Spanish selected

Asian

Hispanic, Latino, or Spanish

One but NOT multiple of the options:

  • Middle Eastern or North African
  • Native Hawaiian or other Pacific Islander

AND

  • Hispanic, Latino, or Spanish selected

Another single population

Hispanic, Latino, or Spanish

Two or more of any of the following selected:

  • White
  • Black, African American, or African
  • Asian
  • Middle Eastern or North African
  • Native Hawaiian or other Pacific Islander

AND

  • Hispanic, Latino, or Spanish selected

More than one population

Hispanic, Latino, or Spanish

None of these fully describe me

None of these fully describe me

None of these fully describe me

Prefer not to answer

PreferNotToAnswer

PreferNotToAnswer

Skip

Skip

Skip

[Survey not completed by participant]

No matching concept

No matching concept

* Native American and Alaskan Natives are removed from the CDR as the Program engages the NIH Tribal Council on important research use of data 

 

OBSERVATION TABLE

Race and ethnicity data in the Observation table comes from the answers to the question below in THE BASICS survey.

Question: Which categories describe you? Select all that apply. Note, you may select more than one group.

Options: White; Black, African American or Africa; Asian; Native American or Alaska Native*; Middle Eastern or North Africa; Native Hawaiian or other Pacific Islander; Hispanic, Latino, or Spanish; None of these fully describe me; Prefer not to answer

Note: that there will only be 2 rows in the case that someone selects Hispanic and something else

PARTICIPANT SELECTION(S)

Observation Table Row 1

Observation Table Row 2 

Only White selected

White

 

Only Black, African American, or African selected

Black

 

Only Asian selected

Asian

 

One but NOT multiple of the options selected:

  • Middle Eastern or North African
  • Native Hawaiian or other Pacific Islander
  • None of these fully describe me 

Another single population 

 

Only Hispanic, Latino, or Spanish selected

Hispanic, Latino, or Spanish

 

Two or more of any of the following selected:

  • White
  • Black, African American, or African
  • Asian
  • Middle Eastern or North African
  • Native Hawaiian or other Pacific Islander

More than one population

 

 

White and Hispanic, Latino, or Spanish selected

White

Hispanic, Latino, or Spanish

Black and Hispanic, Latino, or Spanish selected

Black

Hispanic, Latino, or Spanish

Asian and Hispanic, Latino, or Spanish selected

Asian

Hispanic, Latino, or Spanish

One but NOT multiple of the options:

  • Middle Eastern or North African
  • Native Hawaiian or other Pacific Islander

AND

  • Hispanic, Latino, or Spanish selected

Another single population

Hispanic, Latino, or Spanish

Two or more of any of the following selected:

  • White
  • Black, African American or African
  • Asian
  • Middle Eastern or North African
  • Native Hawaiian or other Pacific Islander

AND

  • Hispanic, Latino, or Spanish selected

More than one population

Hispanic, Latino, or Spanish

Prefer not to answer

PreferNotToAnswer

 

Skip

Skip

 

[Survey not completed by participant]

No matching concept

No matching concept

Native American and Alaskan Natives are removed from the CDR as the Program engages the NIH Tribal Council on important research use of data

For additional information on how All of Us protects participant privacy by means of data removal, suppression, or generalization, click here. 

 

Please review our All of Us Research Program Stigmatizing Research Policy for further information. 

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